Perceived Family and Organizational Support among People with Dwarfism in Tamil Nadu, India: A Qualitative Inquiry
Aims
Despite the fact that society has become tolerant and inclusive, people of short stature still experience stigma and discrimination in every aspect of life. The study focuses on the peculiar challenges which extend from household to environmental infrastructure and also aims to understand the significance of family and organizational support to lead an integrated life.
Methods
The inclusion criterion to purposively select twelve adult participants in the study is that they must be an associate to the organization exclusively functioning for the empowerment of short statured. Data was gathered using semi structured interview guide and thereafter thematic analysis was done.
Results
Results revealed the existence of wide range of peculiar difficulties encountered daily which extend from household to public spaces, like difficulty in finding cloths which fit them appropriately, strain to cook with their body size, loss of breath in a crowd amongst average sized people, higher chances of heavy vehicle hitting them accidentally etc,. Dwarfs receive support from parents, siblings, partner and children through acceptance, care and emotional assistance to combat their inability and to accomplish their tasks. Organizational support assists them in the aspect of partner selection, career guidance and to voice out for their rights thereby increasing the chances of social integration.
Conclusion
The combined support of family members and organization is necessary to a dwarf person in order to overcome and cope with the peculiar challenges encountered every day to attain a living with utmost wellness.
Limitations
The data on the number of dwarfs in India is not available which makes it tough for the future researchers to give equal representations to study their issues and to give an overall generalization.
Keywords
Dwarfs
short stature
Family support
organizational support
challenges
Authors
How to Cite
Zuvairiya Nassar, Sampath Kumar Srinivasan (2024-01-29). Perceived Family and Organizational Support among People with Dwarfism in Tamil Nadu, India: A Qualitative Inquiry. Disability, CBR & Inclusive Development, Vol. 34 No. 3 (2023): Autumn Issue 2023, 104-121. https://doi.org/10.20372/dcidj.683
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Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution License By-NC-ND 4.0 that allows others to share the work with an acknowledgement of the work's authorship and initial publication in this journal.
Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal.
Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work (See The Effect of Open Access ).
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