Caregiver Perceptions about Factors Impacting their Ability to Carry out Home-Based Therapy Programmes in Central Botswana: A Qualitative Study
Aim. Home-based programs, as an aspect of Community Based Rehabilitation (CBR), are provided as an integral part of remedial programming for children with disabilities in central Botswana. Observed difficulties with integration of these activities into daily living were deemed worthy of further investigation. The authors’ aim was to gain an in-depth picture of caregiver and therapist perceptions about the factors that impacted ability to carry out prescribed therapy.
Methods. Purposive sampling was used. Therapists and caregivers were recruited for semi-structured qualitative interviews through active occupational therapy and physiotherapy contacts in central Botswana. Caregivers lived in different villages served by CBR and had been referred for therapy at the NGO branch office. Twelve questions for caregivers and 9 for therapists were presented during in-person meetings.
Results. Interviews with 5 caregiver family members and 4 therapists were audio recorded and transcribed by the first author. Thematic analysis combined manual coding and NVivo software. Participant response themes described both direct and indirect influences on adherence to the home program. Direct influence themes were child characteristics, therapy competence and frequency, competing demands, and other issues. Indirect influence themes, which represented major impediments for carrying out a home program, were insufficient preparedness of healthcare providers, mismatched social welfare services, support system inadequacies, and language barriers.
Conclusions. The findings of this study underscore the need for understanding the lived experiences of parents and other caregivers who are charged with carrying out home-based therapy programs for children with disabilities. Given this knowledge, workers in the CBR system can implement solutions in the community designed to educate policymakers and workers in the social welfare system while assisting clients to overcome barriers and advocate for their needs.
Keywords
Onset of the COVID-19 pandemic interfered with completion of all planned interviews.
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Gerald Odhiambo Oler, Linda Niemeyer (2023-10-18). Caregiver Perceptions about Factors Impacting their Ability to Carry out Home-Based Therapy Programmes in Central Botswana: A Qualitative Study. Disability, CBR & Inclusive Development, Vol. 34 No. 2 (2023): Summer Issue, 87-109. https://doi.org/10.20372/dcidj.691
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Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal.
Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work (See The Effect of Open Access ).
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