Comprehensive Management of People with Cerebral Palsy: An Indian Perspective

Kavitha Raja , Saumen Gupta , Priyanka Shirsath
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DOI: https://doi.org/10.47985/dcidj.415
Submitted: 2020-11-12 10:21:57
Published: 2021-05-06

Purpose: Guidelines for the management of people with cerebral palsy are available from many countries. However, these cannot be adopted in their entirety in other countries due to socio-cultural differences and varied health systems. This study set out to develop guidelines for the management of people with cerebral palsy, throughout their lifetime, in India.

Methods: A mixed methodology with a multiphasic approach was used. The first phase involved an extensive literature review to compile current evidence about the management of people with cerebral palsy. In the second phase, a questionnaire was given to stakeholders in order to explore current practices. The third phase consisted of consensus-building meetings with stakeholders, to develop resolutions that incorporate global best-practice recommendations for India.

Results: Responses from the second phase were compiled and categorised based on discipline.  Proceedings of the consensus meetings were transcribed verbatim and best evidence was synthesised to understand current global practice guidelines. Resolutions were formed within the framework of the results of phases I and II. These were ratified by experts and then formalised.

Conclusion: Sixty-four resolutions were formed, detailing a framework for multidisciplinary management of persons with cerebral palsy throughout their lifetime. A card with guidelines was developed to document all aspects of rehabilitation, development and care. However, the utilisation and application of these guidelines have not been explored as yet.

Keywords

SAKSHAMA current practice of cerebral palsy care lifelong care multidisciplinary management primary health

Authors

Kavitha Raja
https://orcid.org/0000-0001-8787-2079
Dr. Kavitha Raja is a Physiotherapist by training and has over 35 years of clinical experience. She has a special interest in the rehabilitation of people with cerebral palsy and spinal cord injury survivors. She has a strong academic background and is currently Professor and Principal, JSS College of Physiotherapy & Deputy Director, (Therapy Services) JSS PMR Centre
Saumen Gupta
https://orcid.org/0000-0002-2870-8591
Dr. Saumen Gupta completed his post-graduation in Physiotherapy with a CBR specialty. He has a special interest in pediatric disabilities and is currently an Associate Professor in Physiotherapy at Sikkim Manipal College of Physiotherapy.
Priyanka Shirsath
Priyanka Shirsath is a Physiotherapist with a post-graduate degree in CBR. She is interested in the rehabilitation of people with disabilities, especially on issues related to ergonomics at the workplace and access issues.  She is currently an independent practitioner.

How to Cite

Kavitha Raja, Saumen Gupta, Priyanka Shirsath (2021-05-06). Comprehensive Management of People with Cerebral Palsy: An Indian Perspective. Disability, CBR & Inclusive Development, Vol. 32 No. 1 (2021): Spring, 101-129. https://doi.org/10.47985/dcidj.415

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