Role of Young Carers of Parents with a Disability in Sierra Leone and Cameroon: an Explorative Study

Abstract

Purpose: This study aimed to get insights into the role of children who are caring for their parents with a disability in Sierra Leone and Cameroon.

Method: Quantitative and qualitative data were collected using two different questionnaires that were distributed among parents with a disability and community fieldworkers. The parents were asked to answer questions about their personal life and the roles that their children, other family members and aid organisations play in their lives. The fieldworkers were asked about their experiences and opinions regarding children’s roles as caregivers for their parents.

Results: It was found that children supported their parents in performing domestic chores, childcare, and intimate and general caregiving. They also gave emotional support, mostly by showing compassion. Most parents wanted more help in raising their children, as well as financial support. Fieldworkers judged the caring roles of children as a responsibility, a blessing, or a burden.

Conclusion: This study indicates that children play diverse roles in caring for their parents with a disability. Future research could map cultural norms and expectations about a child’s caregiving responsibilities, and focus on the possible consequences for a young carer, like dealing with poverty or being unable to attend school.