We Support Each Other: Lived Experiences of Natural Support among Persons with Disabilities in Ethiopia
Abstract
Aim: Evidence suggests that natural support plays a crucial role in promoting the inclusion of persons with disabilities. Despite its significance, the community’s role in providing natural support remains underexplored in Ethiopia. This lack of exploration may obscure the importance of such support, resulting in it being undervalued and underutilized in a context where formal support systems are already limited. This study sought to understand the breadth, impact, and value of natural support for persons with disabilities, and to identify factors that could enhance it.
Method: We employed an exploratory-descriptive qualitative design, semi-structured interviews for data collection, and a reflexive thematic analysis. The study utilized Ethics of Care, Dependency, and Disability, and Appreciative Inquiry as theoretical lenses. Purposive sampling was used to recruit 21 participants. Persons with disabilities were recruited through the University of Gondar’s community-based rehabilitation program, while neighbours were recommended by those persons with disabilities and/or their caregivers.
Results: Persons with disabilities receive food, clothing, school supplies, transportation, emotional support, information, and advocacy support from family, friends, and neighbours. They reciprocate by offering emotional support, helping with household tasks, and financial and material support. Improving community awareness, expanding social networks for persons with disabilities, and providing livelihood support for caregivers can strengthen natural support.
Conclusion: In the Ethiopian context, where formal support is limited, the government and its partners must recognize the importance and value of natural supports within communities for persons with disabilities and design community-based programs that effectively enhance these supports.
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