Stakeholders’ perspectives on a pilot project focusing on improving access to primary healthcare for adults with disability in Santiago Atitlán, Guatemala

Goli Hashemi (1), Mary Wickenden (2), Ana Leticia Santos (3), Shaffa Hameed (4)
(1) Samuel Merritt University and London School of Hygiene and Tropical Medicine, UK, United States,
(2) Institute of Development Studies, United Kingdom,
(3) Blitz Language, Guatemala,
(4) London School of Hygiene and Tropical Medicine, United Kingdom

Abstract

Background: Primary healthcare has been identified as a key strategy in not only achieving Universal Health Coverage but also in Goal 3, Health, of the United Nation’s Sustainable Development Goals. Unfortunately, however, an estimated 4.5 billion people, more than half of the global population, lack access to essential health services, including primary healthcare. Research shows that despite their greater need for healthcare, people with disabilities experience greater barriers to access due to discrimination, stigma, and social disadvantages. People with disabilities make up the largest minority group in the world at 16% of the world population. Community Based Rehabilitation (CBR), a strategy developed to meet the needs of people with disabilities in low- and middle-income countries, is a multisectoral approach based on implementing services through the combined efforts and engagement of different governmental and non-governmental sectors, people with disabilities and their families, and the broader community. Health is one of the five key components of CBR. Aim: This paper aims to explore the perspectives of the various stakeholders on a CBR pilot program developed to improve access to health services, specifically primary healthcare for people with disabilities in Santiago Atitlan, Guatemala. Method: A qualitative approach was used to explore the perspectives of the CBR program’s stakeholders. A total of 27 participants were interviewed. Results: Four themes were identified: program challenges, program facilitators, program impact and sustainability of the program.  The results indicate that despite challenges faced by the program, there was a positive impact on the community and improved access to primary healthcare for people with disabilities. Conclusion: CBR has the potential to increase the inclusion of people with disabilities in mainstream health services. Implications: There remains a need for ongoing research on the impact of CBR in improving access to and use of mainstream healthcare services by people with disabilities.

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Authors

Goli Hashemi
goli.hashemi@lshtm.ac.uk (Primary Contact)
Mary Wickenden
Ana Leticia Santos
Shaffa Hameed
Author Biographies

Goli Hashemi, Samuel Merritt University and London School of Hygiene and Tropical Medicine, UK

Goli Hashemi is an occupational therapist (OT) with over 20 years of clinical expertise working with adults with various impairments. She has worked with people of all abilities in Canada, US, Cameroon and Cambodia as an OT practitioner and as a researcher in Canada, Malawi, Vietnam, Cameroon and Guatemala. Goli is a faculty member at the Department of Occupational Therapy at Samuel Merritt University, in Oakland California and a PhD Candidate at the London School of Hygiene and Tropical Medicine, in London, UK. Her research focuses on access to primary healthcare services for people with disabilities in low- and middle-income countries. 

Mary Wickenden, Institute of Development Studies

Mary Wickenden is medical/social anthropologist at the Institute of Development Studies, UK. She leads the disability research team there, focusing on the experiences and perceptions of children and adults with disabilities and their families. She uses mainly inclusive, participatory, qualitative methods to explore a broad range of aspects of disabled people’s lives including: inclusive health and education, community based inclusive development, gender, sexuality and intersectionality, and working with peer researchers with disabilities.

Ana Leticia Santos, Blitz Language

Ana Leticia Santos is a translator and interpreter based in Guatemala City. She has been a sworn translator since 2006, and obtained her Master’s degree in Translation in 2023. During these years, she has worked closely with the community, working in the areas of food security, education, sanitation, residential care, and disabilities. Such experiences raised her consciousness and had an impact on advocating for marginalized populations.

Shaffa Hameed, London School of Hygiene and Tropical Medicine

Shaffa Hameed is an Assistant Professor at the International Centre for Evidence in Disability (ICED) at LSHTM. Prior to joining ICED in 2016, she undertook a number of qualitative and policy research commissioned by international and local NGOs in the Maldives, contributing to regional and local understanding of social and religious barriers to reproductive health. Her work at the United Nations Population Fund (UNFPA) focused on evaluating programmes and research on sexual and reproductive health and rights and gender-based violence, with emphasis on strengthening institutional response to these. The common thread throughout her research career has been sexual and reproductive health and rights of vulnerable groups, based on which she completed her doctorate at the London School of Economics and Political Science in 2012.

1.
Hashemi G, Wickenden M, Santos AL, Hameed S. Stakeholders’ perspectives on a pilot project focusing on improving access to primary healthcare for adults with disability in Santiago Atitlán, Guatemala. DCIDJ [Internet]. 2025 Jul. 22 [cited 2025 Jul. 26];36(2):28-39. Available from: https://dcidj.uog.edu.et/index.php/up-j-dcbrid/article/view/763

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