Positive and Negative Impacts on Caregivers of Children with Intellectual Disability in India

G.S. Adithyan; M, Sivakami; John Jacob

doi:10.5463/dcid.v28i2.595

G.S. Adithyan ⁽¹⁾, M, Sivakami ⁽²⁾, John Jacob ⁽³⁾

(1) School of Health Systems Studies, Tata Institute of Social Sciences, Mumbai, India,

(2) Centre for Health and Social Sciences, School of Health Systems Studies, Tata Institute of Social Sciences, Mumbai, India,

(3) Dept. of Family Medicine, Christian Fellowship Hospital, Tamil Nadu, India

https://doi.org/10.5463/dcid.v28i2.595

Issue
Vol. 28 No. 2 (2017): Summer 2017

Submitted
September 14, 2020

Published
August 22, 2017

Keywords:

Intellectual disability, children, parents, impacts, caregivers, strategies

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Abstract

Purpose: The factor integral to the empowerment of children with intellectual disability is the presence and active involvement of support mechanisms such as their family and their caregivers. This study assesses both positive and negative impacts on parents/caregivers of children with intellectual disability in Oddanchatram block of Dindigul District in Tamil Nadu, India.

Method: Mixed method techniques (quantitative and qualitative) were used.

Results: Although many disturbing realities in the family situation were revealed, there were also positive impacts which were a hopeful sign.

Conclusion: Empowering the caregivers of children with intellectual disability is the first step towards inclusion of these special children in society. Various strategies to achieve this goal are discussed in the study.

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Authors

G.S. Adithyan

School of Health Systems Studies, Tata Institute of Social Sciences, Mumbai

adithyangs@gmail.com (Primary Contact)

M, Sivakami

Centre for Health and Social Sciences, School of Health Systems Studies, Tata Institute of Social Sciences, Mumbai

John Jacob

Dept. of Family Medicine, Christian Fellowship Hospital, Tamil Nadu

Author Biographies

G.S. Adithyan, School of Health Systems Studies, Tata Institute of Social Sciences, Mumbai

Dr. Adithyan G.S is a MPH graduate from School of Health Systems Studies (SHSS), Tata Institute of Social Sciences (TISS), Mumbai and had worked as a Research Assistant in TISS for one year. Recently, he joined the National Health Mission, Tamil Nadu as a State Consultant. His key areas of interests are health systems strengthening and health of marginalized communities.

M, Sivakami, Centre for Health and Social Sciences, School of Health Systems Studies, Tata Institute of Social Sciences, Mumbai

Muthusamy Sivakami is a Professor and Chairperson in the Center for Health and Social Sciences (CHSS), School of Health Systems Studies (SHSS), Tata Institute of Social Sciences (TISS), Mumbai. She broadly works in the areas of Demography, Gender and Health. She holds a Ph.D in Population Studies. She was trained as a quantitative researcher and has vast experience in conducting large scale surveys like GATS, NFHS and DLHS. Over a period of time, she has also gained experience in conducting qualitative research studies. Her current research uses a mixed methods approach. She has published widely in peer reviewed national and international journals.

John Jacob, Dept. of Family Medicine, Christian Fellowship Hospital, Tamil Nadu

Dr. John Jacob DNB is currently the Senior Consultant in Department of Family Medicine, Christian Fellowship Hospital, Oddanchatram, Tamil Nadu, India. Currently, he focuses on family medicine training, adolescent health and early identification of children with disabilities.

1.

Adithyan G, Sivakami M, Jacob J. Positive and Negative Impacts on Caregivers of Children with Intellectual Disability in India. DCIDJ [Internet]. 2017 Aug. 22 [cited 2025 Jan. 30];28(2):74-9. Available from: https://dcidj.uog.edu.et/index.php/up-j-dcbrid/article/view/261

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